黑料正能量 Note: As we get closer to the 黑料正能量 41st Annual Conference, 鈥楶romoting Rights Across the Nation, Recovery Across the Lifespan,鈥 we would like to highlight some of our speakers and presenters. Today鈥檚 feature is Kelly Davis, Vice President of Peer and Youth Advocacy at Mental Health America. Kelly recently provided wonderful commentary on a recent TIME article covering the challenges and flaws in our current mental health care system. She spoke about the foundational issues stemming from the system鈥檚 focus on diagnosis and medications, leading many services to focus less on the 鈥渙utcomes that matter to people.鈥 While medication helps many people, our system must provide equal focus on outside factors affecting mental health, like access to affordable housing, employment, and healthy food. See below for Kelly鈥檚 comments and the full article. Kelly will be part of a panel presentation on Mental Health in Schools along with Dawn Yuster, Civil Rights Lawyer and Mental Health Advocate, and Janine Perazzo, Assistant Vice President at the Office of Behavioral Health at NYC Health + Hospitals. You can register for our upcoming conference using the links below.
New article in TIME discusses broad and foundational issues in mental health services with major points, including:
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The failures of the DSM + the impact of these on people and systems.
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Therapy helps many people but 1) one of the most important things is the relationship between the person providing and receiving support, whatever the intervention is and 2) these interventions are rarely measured in practice.
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In the cases where interventions are measured, they are often focused on things that matter to systems (# of sessions, treatment compliance) rather than the outcomes that matter to people.
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Medication (that has significant limitations for most people but is often the default due to a wide number of issues) cannot address outside factors, like bullying and divorce, or issues like exposure to gun violence, discrimination, and poverty.
There are broader things that are left out or not fully addressed by this article including, but not limited to:
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the impact of discrimination, including racism, homophobia, transphobia, and ableism, broadly and *inside* of services and systems, in addition to the *foundations* of the field,
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the economic factors that impact people (student loans, wealth/income inequality, housing costs, etc.) as well as those ($$$) that drive decision-making among those in positions of power and influence, and
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broader solutions that can increase access to support and address core issues beyond just 鈥渨orkforce expansion鈥 (peer specialists, non-clinical programs, public health strategies).
-Kelly Davis
America Has Reached Peak Therapy. Why Is Our Mental Health Getting Worse?
By Jamie Ducharme | TIME | August 28, 2023
The U.S. has reached peak therapy. Counseling has become fodder for hit books, podcasts, and movies. Professional athletes, celebrities, and routinely go public with their mental health struggles. And everyone is talking鈥斺攊n the language of therapy, peppering conversations with references to gaslighting, toxic people, and boundaries.
All this mainstream awareness is reflected in the data too: by the latest federal estimates, about and , an since 2002. Even in the recent past鈥攆rom 2019 to 2022鈥攗se of mental-health services jumped by almost 40% among millions of U.S. adults with commercial insurance, according to in JAMA Health Forum.
But something isn鈥檛 adding up. Even as more people flock to therapy, U.S. mental health is getting worse by multiple metrics. by about 30% since 2000. Almost a third of U.S. adults now , roughly , and about like bipolar disorder or schizophrenia. As of late 2022, just down from 43% two decades earlier.
Trends are going in the wrong direction, even as more people seek care. 鈥淭hat鈥檚 not true for cancer [survival], it鈥檚 not true for heart disease [survival], it鈥檚 not true for diabetes [diagnosis], or almost any other area of medicine,鈥 says Dr. Thomas Insel, the psychiatrist who ran the National Institute of Mental Health (NIMH) from 2002 to 2015 and author of Healing: Our Path from Mental Illness to Mental Health. 鈥淗ow do you explain that disconnect?鈥
Dr. Robert Trestman, chair of the American Psychiatric Association鈥檚 (APA) Council on Healthcare Systems and Financing, says there are multiple factors at play, some positive and some negative. On the positive side, more people are comfortable seeking care as mental health goes mainstream and becomes less-stigmatized, increasing the total number of people getting diagnosed with and treated for mental-health issues.
Less positively, Trestman says, more people seem to be struggling in the wake of societal disruptions like the pandemic and the Great Recession, driving up demand on an already-taxed system such that some people can’t get the support they want or need.
Some experts, however, believe the issue goes deeper than inadequate access, down to the very foundations of modern psychiatry. As they see it, the issue isn鈥檛 only that demand is outpacing supply; it鈥檚 that the supply was never very good to begin with, leaning on therapies and medications that only skim the surface of a vast ocean of need.
What’s Really in a Diagnosis
In most medical specialties, doctors use objective data to make their diagnoses and treatment plans. If your blood pressure is high, you鈥檒l get a hypertension drug; if cancerous cells turn up in your biopsy, you might start chemotherapy.
Psychiatry doesn鈥檛 have such cut-and-dry metrics, though not for lack of trying. Under Insel, numerous NIMH research projects aimed to find genetic or biological underpinnings of mental illness, without much payoff. Some conditions, like schizophrenia, have . But by and large, Insel says, 鈥渨e don鈥檛 have biomarkers. We don鈥檛 have a lot of things that you would have in other parts of medicine.鈥
What psychiatry has is its Bible, the Diagnostic and Statistical Manual of Mental Disorders (DSM). The DSM sets diagnostic criteria for mental-health conditions largely based on symptoms: what they look like, how long they last, how disruptive they are. Relative to other medical fields, this is a fairly subjective approach. It鈥檚 essentially up to each clinician to decide, based on what they observe and their patient tells them, whether symptoms have crossed the line from normal to disorder鈥攁nd this process is increasingly occurring during brief appointments on teletherapy apps, where things can easily slip through the cracks.
Dr. Paul Minot, whose nearly four decades as a psychiatrist do not stop him from vocally critiquing the field, feels his industry is too quick to gloss over the “ambiguity” of mental health, presenting diagnoses as certain when in fact there’s gray area. Indeed, research suggests both and are common in psychiatry. One even concluded that the criteria underlying psychiatric diagnoses are 鈥渟cientifically meaningless鈥 due to their inconsistent metrics, overlapping symptoms, and limited scope. That’s a sobering conclusion, because diagnosis largely determines treatment.
鈥淚f I鈥檓 giving you an antibiotic but you have a viral infection, it鈥檚 not going to do anything,鈥 Trestman says. Similarly, an antidepressant may not work well for someone who actually has bipolar disorder, which can be mistaken for depression. may help explain why, even though antidepressants are one of the most-prescribed drug classes in the U.S., they don鈥檛 always yield great results for the people who take them.
Joseph Mancuso, a 35-year-old DJ, music producer, and content creator in Texas who uses the stage name Joman, has been in and out of the mental-health care system since he was a teenager. Over the years, he鈥檚 received a range of diagnoses, including depression and bipolar disorder, that he says never felt quite accurate to him. (More recently, he received a diagnosis that felt right: complex post-traumatic stress disorder.) These diagnoses led to numerous prescriptions, some of which helped and many of which didn鈥檛. 鈥淚 felt at times that I was just a dartboard and they were just throwing darts and seeing what would stick,鈥 he says.
Some treatments don鈥檛 seem to stick regardless of whether a patient was properly diagnosed. In a , researchers re-analyzed data used to assess the efficacy of supposedly research-backed mental-health treatments. Some methods鈥攍ike exposure therapy, through which people with phobias are systematically exposed to their triggers until they鈥檙e desensitized to them鈥攃ame out looking good. But a full half of the therapies did not have credible evidence to back them, the authors found.
鈥淚t鈥檚 not the case that, holy shit, therapy just doesn鈥檛 work at all,鈥 says co-author Alex Williams, who directs the psychology program at the University of Kansas. But Williams says the results inspired him to make some changes in his practice, leaning more heavily on therapeutic styles with the best data behind them.
Over-Medicated…and Over-Therapized?
Even styles of therapy with solid evidence behind them can vary in efficacy depending on the clinician at the reins. One of the best predictors of success in therapy, , is the 鈥攚hich may explain why it can feel like a crapshoot, with some people leaving their sessions feeling enlightened and empowered and others feeling the same as when they walked in.
The latter scenario was the case for 鈥淪horty,鈥 a 31-year-old from North Carolina who asked to be identified by his nickname to preserve his privacy. Shorty became disillusioned with therapy after trying it while struggling with substance abuse in college. 鈥淲e just talked,鈥 he says, 鈥渂ut we [weren鈥檛] really solving anything. I was just paying this dude money.鈥
Some people may indeed benefit from therapy, Shorty says. But it annoys him that the practice is sometimes seen as an automatic fix for life鈥檚 problems when both anecdotal evidence and scientific data suggest it doesn鈥檛 work for everyone. The APA says 鈥攂ut not everyone does, and a small portion may even experience negative effects, . Those who improve before they have a breakthrough.
Given the significant investment of time, money, and energy that may be required for therapy to succeed, it鈥檚 perhaps unsurprising that medication, which is by contrast a quicker fix, is so popular. As of 2020, about in the past year. Within that class, antidepressants are the most commonly used.
There certainly are people who report that their symptoms improve or disappear after taking an antidepressant, and research suggests they are particularly effective for people with severe depression. People with , according to the National Library of Medicine. But the data on antidepressants aren鈥檛 as solid as one might expect for one of the most widely used drug classes on the market.
In the early 2000s, the NIMH ran a meant to compare different antidepressants head-to-head, in hopes of determining whether some worked better than others across the board or in specific groups of patients. Instead, Insel says, 鈥渨hat we came out with was the evidence that, actually, none of them are very good. It was really striking how poorly all of the antidepressants performed across the entire population.鈥 Most people had to try multiple drugs, or take multiple at once, to go into remission, and about 30% of people in the trial never saw complete relief. Lots of people also dropped out before the study ended.
In the years since, studies have reached lukewarm findings about antidepressants. A of data from 522 trials found that all of the 21 analyzed drugs worked better than placebos鈥攂ut their benefits were 鈥渕ostly modest.鈥 went further, concluding that antidepressants’ effects are 鈥渕inimal and possibly without any importance to the average patient with major depressive disorder.鈥
Dr. Joanna Moncrieff鈥攁 founding member of the Critical Psychiatry Network, a group for psychiatrists who are skeptical of the mental-health establishment鈥攂elieves that鈥檚 because some antidepressants don’t work the way they’re advertised. For decades, researchers theorized that depression stems from a shortage of mood-regulating neurotransmitters, particularly serotonin, in the brain. Blockbuster antidepressants like Prozac, which hit the U.S. market in the 1980s, are meant to boost those serotonin levels.
But , as well as other scientists鈥 work, suggests that depression isn鈥檛 caused by low serotonin levels, at least not entirely. And if serotonin isn鈥檛 the main problem, Moncrieff says, taking these drugs is 鈥渘ot correcting a chemical imbalance. It is creating a chemical imbalance.鈥
So why do some people feel better after taking antidepressants? They clearly have some effect on the brain, potentially improving mood, but Moncrieff isn鈥檛 convinced they鈥檙e really treating the root cause of depression. To do that, she believes, clinicians need to help people solve problems in their lives, rather than simply prescribing a pill.
鈥淟ots of people would disagree with that,鈥 Moncrieff admits. But studies, including the 2019 research review on psychiatric treatments, do show that 鈥,鈥 a modality that teaches people how to manage stressors, can work.
That鈥檚 the approach taken by Minot, who believes psychiatry is too quick to label feelings like sadness and worry as symptoms rather than helping people understand where they come from, what they mean, and how to overcome and even grow from them. In some cases, he says, feeling bad can motivate people to change problematic habits, choices, or relationships.
Not everyone is convinced by this argument. Sadness may be part of life, but Insel says that鈥檚 an entirely different beast than depression, which can manifest more like feeling 鈥渄ead鈥 and may have no clear link to what鈥檚 going on in someone鈥檚 life. 鈥淧eople who think that鈥檚 just on the continuum of the human experience鈥ave never met anybody who鈥檚 truly depressed,鈥 he says.
Minot agrees that severe depression, as well as serious mental illnesses like schizophrenia and bipolar disorder, may require pharmaceutical treatment. Overall, though, he feels psychiatry leans on medications so it doesn鈥檛 have to do the more difficult work of helping people understand and fix life circumstances, habits, and behaviors that contribute to their problems.鈥淚f you can sell people Band-Aids,鈥 Minot asks, 鈥渨hy bother curing them?鈥
Dr. Edmund Higgins, an affiliate associate professor of psychiatry at the Medical University of South Carolina, has grappled with this tension in his own work with incarcerated people鈥攎any of whom, he says, would benefit from therapy. But without the time and resources to do that long-term work, he鈥檚 mostly limited to writing prescriptions. 鈥淵ou can put them on medicines and they鈥檒l have some improvement,鈥 in some cases more than others, Higgins says. 鈥淏ut guess what? They鈥檙e still anxious and depressed.鈥
There are a couple reasons for that, Higgins says. One is that changing the brain can be difficult, and currently available treatments aren’t always up to the task. Another is that 鈥渟o much of our mood and [mental health] is situational.鈥
A medication might help with symptoms, but it can鈥檛 overcome the basic facts of someone鈥檚 life, whether they鈥檙e incarcerated, going through a divorce, being bullied at school, dealing with discrimination, or . Nor can a pill change the fact that we live in a bitterly divided country where , the , more than 10% of the population lives in poverty, bigotry persists, , and the .
鈥淎 lot of people are suffering from material conditions and [are] having a reasonable, rational human response to suffering,鈥 says Mancuso, the musician from Texas. But in his experience, the psychiatric system doesn鈥檛 always acknowledge the range of factors that can influence mental health鈥攆rom personal trauma all the way up to the geopolitical climate鈥攁nd instead seems more focused on getting people diagnosed, medicated, and out the door.
Mancuso points to a sentiment expressed by the philosopher Jiddu Krishnamurti: 鈥淚t is no measure of health to be well-adjusted to a profoundly sick society.鈥
Beyond the Couch
Improving mental health at scale, Insel agrees, requires the system to look beyond the therapist鈥檚 couch. (Insel co-founded a startup focused on community-based behavioral care.) Seemingly non-medical solutions鈥攍ike improving access to affordable housing, education, and job training; building out community spaces and peer support programs; and increasing the availability of fresh food and 鈥攃an have profound effects on well-being, as can simple tools like mindfulness and .
鈥淭hat鈥檚 not the way we roll in health care,鈥 Insel says, but that’s incrementally changing. , for example, has made efforts to broaden what qualifies as health care, and the federal government is funding an , which provide a range of behavioral and physical health services.
Nonetheless, policy solutions are complex, slow-moving, and not guaranteed to take effect鈥攑articularly in a bitterly divided political system. So in the meantime, expanding access to mental-health care is important, the APA鈥檚 Trestman maintains. A system that is is never going to do its job perfectly, particularly when the existing network is concentrated in certain geographic areas, does not reflect the diversity of the U.S. population, and is financially out of reach for many people.
To make the biggest dent in rates of mental illness, Insel says the system needs to focus on adding resources in the right places. , which is important but has limitations. Many teletherapy apps meet demand by expecting clinicians to take on a huge quantity of short appointments, , which makes it difficult for providers to diagnose accurately, establish a rapport with patients, and provide holistic care.
Plus, it鈥檚 not clear that online services adequately serve people 鈥渋n the deep end of the pool,鈥 Insel says. Patients with severe psychiatric diagnoses often need specialized care that can鈥檛 be effectively offered through a mass-market app, and . Brick-and-mortar, community-based care still plays an important role for people with serious mental illness, Insel says.
Focusing on quality, not just quantity, of care is also important, Trestman says. To the extent that people receiving mental health care are measured, these metrics usually focus on process鈥攈ow long they鈥檝e been seen, whether they schedule follow-up appointments鈥攔ather than whether their condition is improving, Trestman says. Research suggests over time.
鈥淲hat really matters is, is someone getting better? Are they able to return to work? Are they able to care for their family? Are they able to start planning for their future?鈥 Trestman says. 鈥淭hose are the key issues that we鈥檙e talking about, and those are just not measured in any consistent way.鈥
In his own practice, Trestman asks patients to define their priorities and what successful treatment means to them. These data may not be as objective as a blood test, but they build in some of the accountability Trestman feels is often lacking.
Patients like Mancuso are hungry for an approach that goes even further鈥攐ne that recognizes the influence of the world beyond their therapist鈥檚 door and focuses not on medication, but on real-world improvement and understanding. That kind of care isn鈥檛 always the default of . But Mancuso believes it鈥檚 what鈥檚 necessary to see improvements in mental health at both a national and personal level.
鈥淚 had a rough upbringing. I had a lot of people take advantage of me. I was bullied really badly in school,鈥 Mancuso says. 鈥淚 needed more than pills. I needed guidance.鈥